Friday, January 23, 2015

Friday's Reflections

I suspect the dinner conversation was interesting for some of my ninth graders this evening. When I was in high school, my mom would try to engage me about my school day. I can still hear her ask: “Tell me one thing you did in each one of your classes.” I think her focus helped to deflate the usual teenager response—fine—to the almost rhetorical question, “How was your day?”  Today, some of my students, if asked the same question, would say, “I drew on Mrs. Kabourek’s head.” While a few of the drawings seemed to embody the text of Animal Farm, I hope today’s life lesson extended beyond the English curriculum. To use a bad pun, it is important to face obstacles, like chemo, head on. If that means that I enlist others to help cover me in “war paint,” in order to confront the enemy, I will do it. I hope that I am teaching my students that it is also okay to be unique…to be different…to try something new and strange… I like to think that I’m helping to break down the barriers between student and teacher, as the interaction brings us closer through a common experience.



I know not every day is perfect in the crazy world of teaching, but today was one of those days that affirmed why I love what I do. We can share meaningful things: “I can. I will!” and crocodilian attitudes; the music of The Grateful Dead and Nike skateboard shoes; the desire to hug koalas (the answer to several students’ Mental Floss questions today); a hug after giving a student a letter of recommendation; and conversations with comments like, “I don't want to leave this class” (when given a pass for the counseling center) and, “This is my favorite part of the day.”



Other doses of daily awesomeness came in the form of crocodile shaped sugar cookies (my mom brought 20 frosted crocs to the cancer center, so the staff could have some sweet sustenance prior to my treatment); I got to hand out some new “I can. I will!” crocodiles; Old Cheney finally opened up creating straight lines to many destinations; South Africa itinerary details are getting ironed out…


Thanks to my low neutrophil counts, I even got a temporary break from chemo.  The head art was not wasted.

Prepping for Chemo War: English 9 Period 2 Head Art


One student drew a bow to tie the head art into Animal Farm.  Mollie, the vain horse, leaves Animal Farm and goes back to the humans, because she needs her creature comforts, like bows and sugar.  I like how some students are tentative at first about drawing on my head, and then they fully commit to the task.  I'm ready for chemo this afternoon.











Friday, January 16, 2015

Me and My [Crocodile] Going to the [Cancer Center]

“Rawr, rawr, rawr, rawr, rawr.” The sliding glass door’s reverberations transport me to this scene in Crocodile Dundee II: Mick Dundee—chased by Colombian drug lords through Australia’s Northern Territory—swings a bullroarer through the air like a lasso, making an emergency “telephone call” to his aboriginal mates for help. This familiar whirring noise pulls me into a place that no one really wants to go to—the Southeast Nebraska Cancer Center; however, despite the name and the services rendered, the place still emits a good vibe, and I am comfortable here. As often as I step through the threshold, it is nice to know that I have “mates” waiting for me on the other side of the automated door. And, there are also legal drug dealers here, too.

Lori usually checks me in; Lori is the person you want greeting you upon arrival, anywhere. She always addresses us by name; she is bubbly and warm; she usually has a comment about my Sharpie or henna art (I also made her jump out of her seat the day I handed her a plastic “I can. I will!” crocodile). I do feel a little pressure to come dressed as the “cancer center mascot.” I see disappointment when I come in with a marker or animal-free head. It is getting harder to be original when I come here every week, but I’ll keep trying to keep entertaining my followers.

I get my clipboard—with a symptoms’ checklist—and grab a flower pen out of its rock garden holder. The flower pen is really an ingenious idea. I suspect that most cancer patients—including myself—have significant memory loss. I’m fairly certain that every person checking in would inadvertently steal the pens if they weren’t so blatantly obnoxious. It is also easy to get a prescription filled, and to waltz out of the “bullroaring” doors without stopping by the pharmacy to pick up the medication. The staff combats this by making the patients carry a giant, florescent laminated sign that says, “Please stop by the pharmacy for your prescription.” Sadly, totally necessary. Aside: When my principal, Sue Cassata, broke her leg—while pregnant, and I was undergoing chemo for the first round with breast cancer, I drove her to school a few days. I left a giant florescent pink note propped on my steering wheel that read, “Don’t forget to pick up your boss; you don’t want to get fired.” I didn’t forget Sue either. We were a pathetic rag-tag team.

I quickly glance over the “symptoms” sheet, and usually I don’t have anything to check off. Granted, I sometimes have strange side effects, but, most of the time, I don’t have anything big to complain about, so I leave the boxes empty. At the top of the sheet, there is a space to write down three concerns that I want to address with the doctor. Last fall, I put “skydiving” down on one of the blanks, as I wanted to acquire a note to clear me for that bucket list experience. I might be the only person who has obtained a prescription for skydiving. Today, I put down “Africa” as a concern.

Usually, I get through the waiting room in a timely fashion. This is good, because I’ve decided that 100% of my life’s stress comes from three things: waiting in lines, waiting for a restroom stall, and waiting for food. Occasionally, I get stuck waiting, if there’s a full house, but I find a delay is always an opportunity to make a new friend.  I am generally my own conversation starter. Patients and staff members can’t help but stare at my head art canvas or my crocheted animal—crocodile and shark—hats. For some weird reason, my head art draws people to me. One man I talked to commented on my crocodile hat. He used to be a ski lift operator, and he reminisced about wearing similar earflap hats to stay warm on the mountain. The ski resort he worked for provided down coats, which employees had to turn back in order to get their last paycheck—he regretted returning his parka when he quit this job.

I get my labs drawn, and then I wait for my doctor’s visit. I have to think that Dr. Green and his P.A., Jill, appreciate my twisted humor. For example, after getting the diagnosis of metastatic breast cancer in August, Dr. Green showed me a picture of something scientific (maybe a tissue stain—is that even a thing?); the box showed I was at a 94%--this was not a good score—and I replied, “At least I got an A.” Yeah, that’s my M.O. Dr. Green tells me about the treatment plan, and I try to change the subject. I ask: “Can I go to South Africa this summer?” He says, “Yes.”

I get escorted back to infusion, and it’s hard not to gravitate to the same chair. The territorial crocodile in me likes the same recliner. Apparently, I’m not the only patient who feels this way. Recently, an older man commented, after seeing me in “his” spot: “Hey, someone’s in my chair!” I had Brian send over a crocodile and an “I can. I will!” card to him in his new spot. I can’t see myself sitting in one of the “private” rooms; there is something soothing about sharing the experience with others. I look down the row of brown, red, and tan leather recliners; I see several other souls in the same predicament. IV poles separate us from each other.  However, our shared illnesses and predicaments bind us together. I try to always hand out plastic crocodiles to the patients I talk to. I should have given the woman I talked to today one; I forgot.

The chairs are comfortable (although Sharpie inked heads will stick to the leather surface). Like the gym, there are TVs and noise reduction headphones available, but I don’t want to disconnect from my supporters (parents, friends, and nurses). Drinks flow from the Pepsi machine—it only has Diet Mountain Dew (just water and no ice for me)—and snacks are carted around in a brown, wicker basket. Usually, I go for the non-cherry fruit snacks—the medicine people have ruined the “cherry” flavor for me.    


“Andrea Kabourek; 9-1-77” is my full name. I find myself rattling off my birthdate during any introduction, in the medical world or not. I have two regular nurses that pump me full of pre-meds and chemo—one nurse is one of my former Creative Writing students (I made sure she earned an “A” before I let her stab me with a needle). Since I sit out in the open infusion room, in order to keep my eyes on all the action, I eavesdrop on the nurse’s conversations. Today, I overheard a nurse (another former East High student) talking about how she signed up for the Lincoln Half Marathon—we talking running for a while, and I didn’t even realize that I was completely finished with chemo, and my mom and I could roll out of there. I would, of course, rather not go through the door at the cancer center on a 60-degree January afternoon; however, if I have to endure the routine of chemo, I wouldn’t want to be anywhere else. “Rawr, rawr, rawr, rawr, rawr.” 



English 9 Period 5 Head Art 1/16/15

Sunday, January 11, 2015

Energy Bus: Vision and Mission

During my summer 2013 Doane Educational Leadership class, we read Jon Gordon's book, The Energy Bus.  One of our assignments required us to write our own "Energy Bus: Vision and Mission." Today, while writing a letter of recommendation, I stumbled on this document.  Written a year before my third cancer diagnosis, my vision and mission still hold true.

Energy Bus: Vision and Mission

My vision for my life (including my health) is:
*To have varied and challenging experiences
*To continue to be happy and positive, no matter what the circumstances or obstacles
*To live every day to the fullest and make the most of every opportunity

My vision for my work, career, job, and team is:
*To share my love of reading, writing, learning, traveling, and running
*To create life-long learners
*To improve daily in my skills as an educator and leader

My vision for my relationship and family is:
*To ride the roller-coaster together with smiles plastered on our faces.

Comparison between my vision and mission statement:
*I believe that my vision for my life meshes with my personal mission statement: My mission is to live my life by inspiring and motivating others to be courageous in their journey. 



* * *




Wednesday, January 7, 2015

Snow Day?

What do you do on your cold weather day? A normal person might sleep in, watch some TV, play with the cats... At about 3:30 yesterday, I found myself rocking a fever and I curled up under two blankets on the couch. I had a $5,000 shot put in my arm on Monday. So, when I had a 102.5 fever, I called the cancer center. Brian and I wound up at the ER on Dr. Dunder's advice. Last night I was miserable, thanks to the fever, but now I feel fine. However, the doctor wants my counts to go up, so I'm being held hostage at Bryan for today and tomorrow. I'm glad we have today off, so I can write sub plans for Thursday. At least I can use my time in captivity productively. Brian has spent the last 20 minutes looking for a spot in the parking garage. Apparently, everyone is hanging at the hospital!

Friday, January 2, 2015

A --> B

A --> B



While I thrive on new experiences, I like a compulsive, ritualistic form of repetition.  I have an old-school Bose six-CD player and an iPhone connection in my Rogue; however, instead of changing tracks, I like to listen to the same songs, over and over again, for several months.  One of the three songs I have listened to constantly, on a CD I have nostalgically labeled “Summer 2014”, is Matt Hire’s ballad “A-B.”

His lyrics are synonymous with my current reality:

Darling, nothing ever goes exactly how you planned it…

My trip itineraries are detailed to the second; my substitute lesson plans are meticulous.  I did not plan on getting breast cancer in 2009; I did not plan on getting leukemia in 2011; I did not plan on getting metastatic breast cancer in 2014.  If you’ve forgotten the story, after my dear friend Bridget Green, sent me to the emergency room at St. E’s in March of 2011, I was confronted by the cancer center’s Saturday on-call oncologist.  In a somber voice, the doctor said, “You have leukemia.”  Brian and I were intending on spending two weeks in China that summer: every detail was mortared together and perfectly in place like the Great Wall once was.  My untypical response to this blunt statement: “Can I still go to China this summer?”  His labored retort: “Can you get your money back?”

I guess I've been here long enough to see
That time can be your dearest friend…

I don’t want my metaphorical money back.  I am constantly shaped and molded by my experiences—even if that “experience” is having cancer—and those experiences are nonrefundable.  Like The Great Wall, my experiences erode and wear me down in spots, but, at the same time, the texture gives me character. 

Or time can be a bandit
When tomorrow changes into history…

I have laughed an August diagnosis of “you-might-have-two-months-without-treatment” in the face.  Like I said, I still don’t accept my current reality, which I heard after my December 26th PET scan: “you-might-have-two-years-with-treatment.”  I wrote in my August 26th blog entry “My Dash” about how I have approached my life prior and post cancer diagnoses: “My philosophy has always been to cram in as much living as possible.  If you know me at all, you know that I don't like wasting time.  Every moment needs to be important; every experience needs to be rich, interesting, and fulfilling.”  
      
But you got, you got to see
That you can live your life walking in a straight line
But it's more than just A to B…

I have managed to stretch out my dash; I plan to keep on stretching it.  I will continue to taunt my diagnosis.  I will do things that healthy people are scared to do: I will jump and land out of a “perfectly good airplane.”  I will run and finish a half marathon with minimal training.  I will continue to seek out new adventures and make new connections.  I will find the way to make the impossible possible.

It's life and what you make it
It's the traveling, not the road that gets you there…

So, I ask you… What will you do with your time?  What will your journey be like?  What adventures will you have?  What knowledge will you seek?  How will you make a difference?  How will you get from A --> B?

But it's more than just A to B
Yeah, it's more than just A to B…

The journey can be simple.  No kidding, I asked Brian to teach me how to make scrambled eggs tomorrow (I just learned to appreciate them in their Costa Rican form this summer). 

The journey can be challenging (and, to be honest, I like to get my way)—I wanted to cash in my Nebraska retirement early, so I could fund South African animal bucket list adventures and cat proof flooring for what I call our house, somewhat affectionately, “Duke’s House of Pee.”  Apparently, I can’t take out retirement without quitting the job I love and am currently fully capable of doing, even though my cancer diagnosis comes with an average two-year warranty.  For the record, I’m not your average “warranty”: I got A+ grades for eight of my 10 graduate classes, and I was angry at myself for getting the two As, even though they were probably due to absences lobbying for Be the Match in D.C. and attending Katherine’s wedding in NYC. 

The journey can be fun and inspirational.  I can continue my honorary role as “Cancer Center Mascot.”  I can make people laugh at an awful disease.

The journey can be mundane or repetitive.  But I can make any journey interesting, because I can see the nuances (“But these cows have bells!”—Right, Brian?), and

it’s more than just A to B…